Strategic partnerships are central to the mission of the Skin Genetics Research Group, enabling access to national data, specialized patient cohorts, advanced molecular technologies, and global research networks. Through collaboration with governmental bodies, private foundations, and international research institutions, the group strengthens research quality, expands translational impact, and advances precision dermatology locally and globally.

Public Sector

1. Ministry of Health

Website:
https://www.moh.gov.jo

Partnership Focus:
Collaboration with the Ministry of Health supports alignment of dermatogenetic research with national health priorities. This partnership facilitates access to population-level data, ethical and regulatory frameworks, and the integration of genetic findings into public health planning and policy development.

Joint Activities:

• Support for population-based studies and registry-linked research

• Policy-informed research on the burden of genetic and dermatologic diseases

• Potential shared funding initiatives and contributions to national precision medicine strategies

Impact:
Enhances the translation of research findings into public health policy and strengthens the national framework for precision dermatology.

​2.  Jordanian Cancer Registry

Website:
http://www.jcr.gov.jo

Partnership Focus:
Collaboration with the Jordanian Cancer Registry provides access to high-quality, population-based national cancer incidence data, with a specific emphasis on skin cancers and their epidemiologic trends. This partnership supports dermatologic oncology research, including genotype–phenotype correlation studies, and enables investigation of the burden, distribution, and demographic patterns of cutaneous malignancies in Jordan.

Joint Activities:

• Registry-linked epidemiologic, molecular, and translational studies

• Collaborative research on genetic susceptibility and potential epigenetic factors in skin cancers

• Integration of registry data with clinical phenotypes and, where available, genetic profiles

Impact:
Strengthens evidence-based dermatologic oncology research and enhances Jordan’s national contribution to skin cancer epidemiology and genetics.

Private Sector

3. DEBRA International (Epidermolysis Bullosa Research Association)

Website:
https://www.debra-international.org/post/new-eb-patient-organization-in-jordan

Partnership Focus:
Collaboration with DEBRA International supports clinical and genetic research on Epidermolysis Bullosa (EB), with an emphasis on identifying novel mutations, characterizing phenotypic variability, and developing context-appropriate care models tailored to local healthcare systems. This partnership facilitates alignment with international standards in the study and management of inherited skin fragility disorders.

Joint Activities:

• Engagement with global EB registries and collaborative research networks
  

• Participation in educational, advocacy, and capacity-building initiatives

Impact:
Enhances diagnostic accuracy, promotes multidisciplinary care, and improves long-term outcomes for patients affected by inherited dermatologic conditions.