Collaboration with the Jordan Cancer Registry enables access to national cancer incidence data, with a specific focus on skin cancers and their epidemiologic trends. This supports research into the burden, distribution, and demographic patterns of cutaneous malignancies in Jordan. Integrating registry data with clinical phenotypes and, where possible, genetic profiles allows for the generation of region-specific insights into skin cancer risk factors and potential genetic and epigenetic factors.
🔗 Website: https://www.moh.gov.jo/Pages/viewpage.aspx?pageID=278
DEBRA International is a leading global organization supporting individuals and families affected by the genetic skin condition Epidermolysis Bullosa (EB). Its goals include advancing clinical and genetic research on EB, documenting novel mutations, understanding phenotypic variability, and developing care models tailored to local healthcare settings.
DEBRA enables engagement with global EB registries, access to specialized clinical guidelines, and participation in educational and advocacy efforts. This collaboration helps improve diagnostics, promote multidisciplinary care, and enhance long-term outcomes for patients living with inherited skin fragility disorders.
🔗 Website: https://www.debra-international.org/post/new-eb-patient-organization-in-jordan