The UJ-CF Research Group is committed to providing accessible and up-to-date educational materials on cystic fibrosis (CF). This section includes guidelines, research articles, case studies, and presentations on CF care, covering both pulmonary and gastrointestinal manifestations. Students, researchers, and healthcare professionals can explore resources on CF genetics, diagnostic approaches, emerging treatments, and best practices for patient management. Additionally, we offer links to international CF organizations, clinical protocols, and patient education materials to enhance knowledge and support those affected by the disease.
• Cystic Fibrosis Foundation (CFF) Tools & Resources: The CFF offers a comprehensive collection of tools and resources to assist researchers in accelerating progress toward new scientific knowledge and therapies for cystic fibrosis. Visit: here
• Johns Hopkins Cystic Fibrosis Center Resources: This center provides a variety of resources about cystic fibrosis, including videos, PDFs, and links, covering topics such as infection control, insurance, and nutrition. Visit: here
To promote scientific collaboration, we provide access to ongoing research projects, recent publications, and data-sharing opportunities related to CF in Jordan and the region. This section highlights our epidemiological studies, genetic research, and clinical trials, ensuring that interested researchers can stay informed about current findings and potential areas for collaboration. Additionally, graduate and undergraduate students involved in CF research can find guidelines on research ethics, methodology, and data analysis tools to support their work.
• CFF Patient Registry Data Requests: The CFF Patient Registry is an invaluable tool for researchers interested in conducting observational studies about people with CF in the United States. Visit: here
• CFF Biorepository: Cystic fibrosis biological samples are available to qualified researchers to help develop promising new studies that will support CF research and aid in drug development and discovery. Visit: here
Recognizing the importance of multidisciplinary collaboration, this section offers opportunities for researchers, clinicians, and students to connect and engage with CF experts worldwide. It includes information on national and international conferences, workshops, and training programs related to CF research and clinical care. Additionally, the UJ-CF Research Group works closely with organizations such as the Gastroenterology Interest Group (GIG), facilitating networking between specialists in CF care. Visitors can also find details on how to join our research group, participate in ongoing studies, or propose collaborative projects to advance CF research and patient care.
• Cystic Fibrosis Research & Translation Centers (CFRTCs): Supported by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), CFRTCs provide support for basic, preclinical, and clinical research efforts to advance scientific knowledge and new therapies for CF. Visit: here
• Cystic Fibrosis Research Institute (CFRI) Education & Support: CFRI seeks to provide the national CF community with current information about cystic fibrosis through educational programs and resources, while offering diverse psychosocial support services. Visit: here